Is Spina Bifida Common?

How long can a person live with spina bifida?

Not so long ago, spina bifida was considered a pediatric illness, and patients would simply continue to see their pediatric physicians into adulthood.

The average life span for an individual with the condition was 30 to 40 years, with renal failure as the most typical cause of death..

Is spina bifida permanent?

Spina Bifida is the most common permanently disabling birth defect that is associated with life in the United States. It’s a type of neural tube defect (NTD) that occurs when a babies neural tube fails to develop or close properly – the literal meaning for Spina Bifida is “split spine”.

Does spina bifida get worse with age?

People with spina bifida experience the usual manifestations of age, but since spina bifida puts pressure on many body systems, age-related declines in affected areas may occur sooner or be more severe. Shunt failure happens to adults, even those whose shunts have not been working for years.

What does spina bifida do to the body?

When the neural tube doesn’t close all the way, the backbone that protects the spinal cord doesn’t form and close as it should. This often results in damage to the spinal cord and nerves. Spina bifida might cause physical and intellectual disabilities that range from mild to severe.

Who is most at risk for spina bifida?

obesity – women who are obese (have a body mass index of 30 or more) are more likely to have a child with spina bifida than those of average weight. diabetes – women with diabetes may have an increased risk of having a child with spina bifida.

What are the long term effects of spina bifida?

Individuals born with spina bifida (myelomeningocele) face serious physical and social consequences, including paralysis, insensate skin, and potential social ostracism associated with loss of bowel and bladder control. Over time, muscle paralysis can produce contractures, joint dislocations, and spinal deformity.

What percentage of the population has spina bifida?

It has been estimated that about 10% to 20% of the U.S. population has spina bifida occulta — and most don’t even know they have it.

Can spina bifida be corrected?

Treatment. Currently, there is no cure for spina bifida, but there are a number of treatments available to help manage the disease and prevent complications. In some cases, if diagnosed before birth, the baby can undergo surgery while still in the womb in an effort to repair or minimize the spinal defect.

Is Spina Bifida a disability?

A congenital disorder present from birth, spina bifida can cause growth impairments, musculoskeletal deformities, neurological disorders, and intellectual deficits, among other complications. … As such, spina bifida can qualify children and adults for disability benefits from the Social Security Administration (SSA).

Who is most affected by spina bifida?

About 1,645 babies are born with spina bifida in the United States each year. In this country, Hispanic women are more likely to have a baby with spina bifida than white or black women.

Does spina bifida run in families?

Most cases of spina bifida are sporadic, which means they occur in people with no history of the disorder in their family. A small percentage of cases have been reported to run in families; however, the condition does not have a clear pattern of inheritance.

Where is spina bifida most common?

There are three main types: spina bifida occulta, meningocele and myelomeningocele. The most common location is the lower back, but in rare cases it may be in the middle back or neck.

What is the life expectancy of a child with spina bifida?

The death rate from age 5 to 40 years in people with treated open spina bifida is 10 times the national average. Many deaths are sudden and unexpected. Survival to age 40 can be predicted from the neurological deficit at birth.

Can babies born with spina bifida walk?

People affected by spina bifida get around in different ways. These include walking without any aids or assistance; walking with braces, crutches or walkers; and using wheelchairs. People with spina bifida higher on the spine (near the head) might have paralyzed legs and use wheelchairs.

What are the odds of having a baby with spina bifida?

Although the occurrences appear to be decreasing, the birth defect occurs in approximately 7 of out every 10,000 live births in the United States. According to the Spina Bifida Association of America, it is estimated that more than 70,000 people in the United States are living with this birth defect.

Can a baby with spina bifida lead a normal life?

With the right treatment and support, many children with spina bifida survive well into adulthood. It can be a challenging condition to live with, but many adults with spina bifida are able to lead independent and fulfilling lives.

What is the mortality rate of spina bifida?

1% per yearThe mortality rate among young people with spina bifida is ~1% per year between 5 and 30 years of age, with the rate being highest among those with the highestlevel lesions 153, 154 .

Can you have a normal life with spina bifida?

“Most do well in school, and many play in sports. Because of today’s medicine, about 90% of babies born with Spina Bifida now live to be adults, about 80% have normal intelligence and about 75% play sports and do other fun activities.”

Is Spina Bifida more common in males or females?

Spina bifida is more common among whites and Hispanics, and females are affected more often than males.

Is Spina Bifida painful?

Adults with Spina Bifida and specifically Spina Bifida Occulta often experience pain.

What is the main cause of spina bifida?

Scientists suspect the factors that cause spina bifida are multiple: genetic, nutritional, and environmental factors all play a role. Research studies indicate that insufficient intake of folic acid—a common B vitamin—in the mother’s diet is a key factor in causing spina bifida and other neural tube defects.